FSHD Global Research Foundation

The FSHD Global Research Foundation is an Australian not-for-profit dedicated to finding treatment and ultimately a cure for Facioscapulohumeral Dystrophy (FSHD) – an inheritable disease which is the most common form of muscular dystrophy in adults and children.


The Foundation is not like other not-for-profit organisations; focused on transparency and accountability, 100% of all tax deductible donations are allocated to current or future medical research investment, grants and education.


Since its inception in 2007, the Foundation has approved 40 research grants in 9 countries, including Australia, USA, Netherlands, Italy, France, Belgium, Spain, New Zealand and Canada.


More than 42 scientists have been funded globally including 13 Australian scientists, who have been funded individually or in collaboration with international scientists. This combined research has led to multiple world-first breakthroughs, not only beneficial to treating FSHD but also in expanding knowledge about other ageing diseases. As a result of FSHD Global funding, 41  scientific publications have also been published.